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Hi I'm Emily

I'm a special needs mom. I'm an aspiring linguist. I'm a little bit nerdy. I'm a Mormon.

About Me

I am mom to a very special little boy. He was born with a severe, life-threatening birth defect of his intestines. We adopted him when he was a week old. He is the light of our lives and pretty much my entire world. He is waiting for a transplant. Until then, he needs regular medical care at home and is often in and out of the hospital. He has a central line & a g-tube. On top of that, a serious infection led to a brain injury for him that has caused several developmental delays, including mild cerebral palsy and apraxia. But that is not his life. He lives and loves his life, almost unaware that he has any limitations. He is teaching me to find joy wherever I am. Besides being a mom, I'm a college graduate. I am fluent in 3 languages (Spanish, Italian, English) and am learning American Sign Language as well. I have taught English as a Second Language. I'm a spreadsheet wizard. I am a novice graphic designer. My husband and I ran a small home-based web and graphic design company for years while trying to have children. After years of trying, a doctor sat us down and explained how the odds were against us. We knew adoption was the path for us. Now I'm a stay-at-home mom, a hospital mom, a special-needs mom. I spend my days changing diapers, changing IV's, driving my son to school and to therapy and to doctors appointments. And I have never looked back.

Why I am a Mormon

There are so many things in this life that don't make sense, that just seem unfair. I am infertile. That is unfair. Others have children whom they can't care for, many abandoning them. That is unfair. I have sat for hours in the ICU watching babies and children struggle for their lives. That is unfair. Children are born every day with horrible defects that keep them from living "normal" lives. Some are caused by choices made by their parents. But many just happen, through no fault of anyone else. That is unfair. Good people suffer every day. Loved ones slip away too soon. There is so much in this world that from a mortal perspective is simply unfair. As Paul said, "For now we see through a glass, darkly." I am a Mormon because there is more to this life than what we see with mortal eyes. We have a Heavenly Father who loves his children. He sees our tears. He hears our prayers. And while not all inequities in this life find balance, He is just and merciful and promises peace and comfort. Not all sorrow is senseless. Not all suffering is wasted. There is a purpose to this life and an eternal plan for each of us. I am a Mormon because families can be eternal. I will never forget the day my family knelt together at a sacred altar so my adopted son could be sealed to us with the promise that, even when his life ends, we can be reunited and he will be ours forever. I have a lot of days that are hard. But know I don't have to face them alone. Many people raising a dying son live in sorrow and fear. Our days are filled with hope and joy because we know where we came from, why we are here, and where we are going after this life.

How I live my faith

I run a support group for families of children like my son. We have 350 members around the world who connect online. Our local support group chapter meets once or twice a year. My son and I regularly visit families at our local children's hospital. I am an advocate for organ donation. And I volunteer teaching in high schools and congregations about adoption as an alternative in unplanned pregnancy. I also organize midweek activities for girls in my neighborhood to help them develop talents, learn to serve others, and increase their faith. I use my computer and language skills to index birth, death, marriage and other pertinent records from around the world. And I am collecting and publishing my own family history in a blog.